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100 | and any abdominal pain | and abdominal pain |
101 | yeah i do have pain its quite mild though | yeah do have pain its quite mild though |
102 | ive always kind of had pain throughout my life and my tummy so its its not unusual for me and kind of combination with everything else | ive always kind of had pain throughout my life and my tummy so its its not unusual for me and kind of combination with everything |
103 | okay yeah and i know youve got a background of rheumatoid arthritis as well is that flared up recently or has that been okay | okay yeah and i know youve got a background of rheumatoid arthritis as well is that up recently or has that been okay |
104 | no its been okay my rheumatoids quite well controlled as well yeah | no its been okay my rheumatoids quite well controlled as well yeah |
105 | and what medication are you taking for that | and what medication are you taking for that |
106 | um just ibuprofen | um just ibuprofen |
107 | yeah just that | just that |
108 | okay and are you using that quite regularly or | okay and are you using that quite regularly or |
109 | um no as again its been okay yeah | um as again its been okay yeah |
110 | okay and whats your weight being doing | okay and whats your weight being doing |
111 | um ive lost a wee bit of weight actually | ive lost a wee bit of weight actually |
112 | yeah okay | yeah okay |
113 | and so do you have any sort of ideas what might be going on yourself or any concerns at this point | and so you have any of ideas what might be going yourself or any concerns at this point |
114 | yeah im a bit worried just because its been so well controlled for few years now im worried that my is my adalimumab stopped working or is something else causing my symptoms | yeah im a bit worried just because its been so well controlled for few years now im worried that my is my adalimumab working or is something else causing my symptoms |
115 | or what do you think | or what do you think |
116 | yeah so theres a few things that might be going on to know we only need few different tests so one of them youre right it could be that the adalimumab kind of lost its effectiveness which sometimes happens and we can test for that by doing a blood test to check for the level of the drug in your body and also um sometimes you could develop antibodies against the drug as well | yeah so theres a few that might be going on to know we only need few different tests so one of them youre right it could be that the adalimumab of lost its effectiveness which sometimes happens and we can test for that by doing a blood test to check for level of the drug in your body and also um sometimes you could develop antibodies against the drug as well |
117 | and which can make it ineffective so we can easily check that and the other thing is that because youve had surgery in the past that can sometimes affect how something called the bile salts get reabsorbed um and sometimes that can cause diarrhoea if youve got high levels of bile salts in your bowel motions but thats quite easy to check for us well | and which can make it ineffective so we can check that and the other thing is that because youve had surgery in the past that can sometimes affect something called bile salts get reabsorbed um and sometimes that can cause diarrhoea if got high levels of bile salts in your bowel motions but thats quite easy to check for us |
118 | and of course you need to also think about whether your disease is actually flaring up as well so the other thing well arrange to do is a faecal calprotectin in which youve probably done before | and of course you need also think whether your disease actually flaring up as well so the other well arrange to do a calprotectin in which youve probably done before |
119 | just a stool test to cheque for inflammation and the bowel so if thats high we might need to look at your medication and think about making some changes | just a stool test to cheque for inflammation and the bowel so if thats high we might need to look at your medication and think about making some changes |
120 | do you have any questions about all of that quite a lot of information | do have any questions about all of that quite lot of information |
121 | yeah its okay if you do need to change my medication like what would be the next step | yeah its okay if you do need to change my like would be the next step |
122 | so theres a few different options so there is a medication called and infliximab which is similar to adalimumab or we might look at you know switching you to a completely different drug um as well also also called the biologic different works in a different way in the bodies it is called vedolizumab but yeah i think first of all well get some up to date tests on first might need to get a ct scan or also an mri scan of your small bowel just to have a look and see if theres any inflammation in the bowel that might be you know causing your symptoms | so theres a few different so there is a medication called and infliximab which is similar to adalimumab or we might look at you know switching you to a completely different drug um as also called the different works in a different way in bodies it is called but yeah i first of get some up to date tests on first might need to a ct scan or also mri scan of your bowel just to have a and see if theres inflammation in the bowel that might be know causing your |
123 | and i had surgery before my treatment wasnt working do you think thats a possibility in the future | i had surgery before my treatment wasnt working do you thats a possibility in the future |
124 | so i mean its always possible we have to always keep it at the back of our mind and hopefully they you know we can try and work out whats going on and that do something medically but yeah ofcourse we have to always think about surgery is as a possibility | so i mean its always possible we have to always keep it the of our mind you know we can try and work out whats on and that do something medically but yeah ofcourse we have to always think about surgery is as a possibility |
125 | yeah but hopefully not | yeah but not |
126 | yes definitely okay | yes definitely okay |
127 | is that okay | is that okay |
128 | yeah thats fine thank you very much for seeing me | thats fine you very much for seeing |
129 | thank you | thank you |
130 | so hello my names dr kosher im one of the gastroenterology doctors and this is the ibd clinic inflammatory bowel disease clinic can you tell me why youve been referred here today | so my dr kosher im one of the gastroenterology doctors and this is the ibd clinic inflammatory bowel disease clinic can you tell why youve been referred here today |
131 | yes so have been having this sort of that having diarrhoea for quite a while theres been a bit of blood in it as well have been a bit a bit concerned so went to see my gp and theyve sent me here | yes so have been this sort of that having diarrhoea for quite a theres been a bit blood in it as well have been a bit a bit concerned so went to see my gp and theyve sent me |
132 | okay and how longs that been going on for | okay and how longs that been going on for |
133 | well its three months three month | well three months three month |
134 | and prior to that where you well | and prior to that where you well |
135 | yeah ive been ive been absolutely ground before that yeah | yeah ive been ive been absolutely before that yeah |
136 | and how often would you say youre moving your bowels each day | and how often would you say youre moving your bowels each day |
137 | probably probably about three or four times i think you know | probably probably about three or four times i think know |
138 | three or four times okay has it ever been more than that | three or times okay has it ever more than that |
139 | it was you know it has been a couple times where its been maybe four or five or six or so | it was know it has been a couple times where its been maybe four or five or six or so |
140 | okay and is the blood mixed in or is it just on white thing would you say | and is the blood mixed in or is it just on thing would you say |
141 | yeah mixed in | yeah mixed in |
142 | and if you had any abdominal pain | and if you had any abdominal |
143 | yeah but its been yeah its been quite a kind of crampy crampy pain yeah | yeah but its been yeah its been quite a kind of crampy crampy yeah |
144 | okay um any other symptoms that youve had that you can think of | okay um any symptoms that youve had that can think of |
145 | um ive noticed that my appetite have not really been eating eating as well as i used to ive got kind of funny rash on my my shin as well | um ive noticed my appetite have not really been eating eating well as i used to ive kind of funny rash on my my shin as well |
146 | okay when did that start | when that start |
147 | so that started about a couple months ago as well | so that about a couple months ago well |
148 | and do you have rashes anywhere else | and do you have rashes anywhere else |
149 | no its just on my shins | no just on my |
150 | okay any other medical conditions that you have | okay any other medical that you have |
151 | yeah i had ive got asthma but never really bothers me sometimes i have to take my blue inhaler | yeah i had ive got asthma but never really me sometimes i to take my blue inhaler |
152 | okay and any other medications that youre taking | and medications youre taking |
153 | no any allergies | no any allergies |
154 | um no | no |
155 | and have you got any family history of any significant medical conditions | and have you got any family history of any medical conditions |
156 | yes my my grand my grand dad had ostrich colitis | my my grand my grand dad had ostrich colitis |
157 | and any other anyone else in the family with inflammatory bowel disease | other anyone else in the family inflammatory bowel disease |
158 | no i dont think so | no i dont think so |
159 | okay so so far youve had some investigations done so weve taken some samples of your stool to make sure that theres no infection there and you also had a colonoscopy a couple of weeks ago did anyone go through the results with you | okay so so far had some investigations done so weve taken some samples of your stool to make sure that theres infection there and also had a colonoscopy couple of weeks ago did anyone through the results with you |
160 | no not really no | no not really no |
161 | so that we took some biopsies when we did the colonoscopy and it looks like you do have something called ulcerative colitis okay so they were in keeping with with that condition i dont know how much you know about inflammatory bowel disease or ulcerative colitis | so that we took some biopsies when we did the colonoscopy and it looks like you do have something called ulcerative colitis okay so they were in keeping with with that i dont know how much know about bowel disease or colitis |
162 | i know wee bit because i have seen my grandma my grandfather had it i dont know i dont know a lot | i know wee bit because i have seen my grandma my grandfather had it i dont know i know a lot |
163 | okay so its what we call a chronic condition so its something that youre going to have life long unfortunately um but its a condition that we can control very well with medications in the vast majority of people so to start with well start you on a course of steroids i dont think youve had any from your gp yet but that should help to sort of calm down the inflammation in your bowel and then well get you started on some other maintenance therapies im going into details of that on at the next consultation do you have any questions about that just at the moment | okay its what we call a chronic condition so its that youre going to have life long unfortunately um but a condition that we can control very well medications in the vast majority of people so to start with well start you on a course of steroids i dont youve had any from your gp yet but that should help to sort of calm down the inflammation in your bowel and then well get you started on some maintenance therapies im going into details of that on at the next consultation do you have any questions about that just at the moment |
164 | um so um yeah sorry its just lot to take in | um so um sorry its just lot to in |
165 | so how long will be on these steroids for is that for lifelong | so how long will on these for is that for lifelong |
166 | so the steroids are normally just for 8 to 68 weeks until the inflammation has has died down | so the steroids are normally just for 8 to 68 weeks until the inflammation has has down |
167 | and hopefully your bowel have it should be going back to normal | and hopefully your bowel have it should be going back to |
168 | and you should know its less blood as well if that doesnt happen with the steroids then we would want to know about that in case we need to do some further investigations but in terms of maintenance therapies that we talked about you will be on those for longer term and often people are on them lifelong or certainly for years depending on the course of their disease | and you should less blood as well if that doesnt happen with the then we would to know about case we need to some further in terms of maintenance therapies we talked about you will be on those for longer term and often people are on them lifelong or certainly for years depending on the course of their disease |
169 | okay so and well also have to arrange some surveillance colonoscopy for you as well just to make sure that you dont develop other conditions that are associated with inflammatory bowel disease okay | okay so and well also to arrange surveillance colonoscopy you as well to make sure that you dont develop other conditions that are associated with inflammatory bowel disease okay |
170 | so well arrange it to see you back in clinic in about six weeks time for a review thank you | so well arrange it to see you back in clinic in about six weeks time for a review thank you |
171 | hello my name is dr kosher and im one of the gastroenterology registrars at the ibd clinic can i take your name please | hello my name is dr kosher and im one of the gastroenterology registrars at the ibd clinic can i take your name please |
172 | yeah its john smith | yeah its john smith |
173 | okay nice to meet you john so tell me whats been going on | okay nice to meet you john so tell whats going on |
174 | well so ive had crohns quite a while now i was diagnosed in early early twenties but i just its been its been okay for a while but its just ive been feeling very just very tired and more lethargic less rested like a few weeks or so i have not been able to go to work i had to call in sick ive got the my bowels have been a bit more bit watery and ive been going a bit more often | well so ive had crohns quite i was diagnosed in early early twenties but i just its been its been okay for a while but its just ive feeling very just very tired and more lethargic less rested like a few weeks so i have not been able to go to work i had to call in sick ive got my bowels have been a bit more bit watery ive been going a bit more often |
175 | okay how often would you say youve been moving your bowels in the last few months | okay how often would say youve been moving your bowels in the last few months |
176 | probably about three or four times a day so yeah | probably about three or four a so yeah |
177 | okay and you said youve not noticed any blood in your bowel motions | okay and you said youve not noticed any blood in your bowel motions |
178 | no theres been no blood its just been really watery | theres been no blood its just been really watery |
179 | okay and does that tend to be worse at night or during the day | and does tend to be worse at night or during the day |
180 | i wouldnt say that much of a difference really its sometimes im up in the night but sometimes its not every night | i wouldnt say that much of a difference really its sometimes im up in the night but sometimes its not every night |
181 | and have you been having any abdominal pain or cramping | and have been having any abdominal pain or cramping |
182 | yeah wee bit of a cramping and abdominal pain its not been too bad but of often have this having abdominal pain i wouldnt say its too much different they are normal for me | yeah wee bit of a cramping and abdominal pain its not been too bad but of often have this abdominal pain i wouldnt say its too much different they are normal for me |
183 | okay and if you noticed any skin rashes at all | okay and if you noticed any skin rashes at all |
184 | no no no nothing like that | no no like that |
185 | and i know that youve been on fortnightly adalimumab | and i know that youve been on fortnightly adalimumab |
186 | and how hows that been going | and hows that been |
187 | yeah its been its been fine since yeah since i had surgery in 2015 and yeah ive been ive been okay since then but yeah its just kind of recently ive just not been feeling that great | yeah its been its been since yeah since i had surgery 2015 and yeah ive been been okay since then but yeah its just kind of recently ive just not been feeling that great |
188 | okay and any problems at the injection sites sort of skin reactions or | okay and any problems at the injection sites sort of skin reactions or |
189 | no thats been fine | no thats been fine |
190 | okay and if you had any trouble with swallowing | okay and if you had any trouble with swallowing |
191 | no no no | no no |
192 | okay what about vomiting or feeling nauseated | okay what vomiting or feeling nauseated |
193 | i say i felt a wee bit a wee bit sick but ive not actually actually being sick | i say i felt bit a wee sick but ive not actually actually being |
194 | okay and have you required any steroid courses from your gp recently | okay have required any steroid courses from your gp recently |
195 | no not recently no | no recently no |
196 | okay okay and any other medical conditions that you have | okay okay and any other medical conditions that you have |
197 | um yes ive got ive got arthritis and ive also got hay fever and asthma as well | um yes ive got ive got arthritis and ive also got hay fever and asthma as well |
198 | and any other medications that youre on other than the adalimumab | and any other medications that youre on other than adalimumab |
199 | so i take i take some diclofenac thats for my my arthritis | so take i take some diclofenac for my my |